Finding a lawyer familiar with the various needs of our unique kid was not that difficult for me. I just called a friend who happened to be an attorney and she did a little research for me. However, I quickly learned that finding a lawyer knowledgeable in all of the actual details themselves isn’t so easy. There are specialists, but the costs can be extreme and we were definitely not prepared for that aspect. Creating a will, powers of attorney for health/medical, and a special needs trust can run a range of prices from anywhere between $400 and $8,000. We’ve now learned that it’s always a good idea to save and be prepared for these costs and maybe even more so than we actually anticipate.
Read MoreAre you still skeptical about opening an ABLE account for your child with Down syndrome? Do you believe that your child’s SSI or Medicaid benefits would be at risk? Are you afraid the government will take the savings if your child passes?
Even though roughly 10 million Americans could benefit from an ABLE account, only 35,000 accounts have been opened since the first program started in 2016.
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