Surely, when Thomas Jefferson wrote we have the right to “life, liberty and pursuit of happiness” in the Declaration of Independence he wasn’t thinking of people like my son who has Down syndrome. Still, this document and our nation’s constitution has been used as proof that my son deserves a life of choice and self-determination with needed supports.
Read MoreAs you know, the law in England currently allows you to terminate a baby after 24 weeks, and indeed to moments before they are born, if they are found to have a “serious disability”. Serious disability is not defined by the law and has been interpreted to include Down’s Syndrome. Heidi, a young, capable woman with Down’s Syndrome wrote to you. She has said that she finds the law “deeply offensive” and is launching a legal battle against the government with regards to this. Your Department of Health and Social Care said; “any decision to terminate must rest on the judgement of the women and her doctors”. As I see it, there appears to be two predominant voices within this debate; those who believe it is an issue of women’s choice, and those who believe it is an issue of the human rights of those with disability.
Read MoreThere are tons of ways to celebrate WDSD. The list below is just 21 of those ways to give you a head start to preparing and planning for 2020’s World Down Syndrome Day Celebration!
Read MoreHaving your student with Down syndrome included in the general education classroom with proper supports can often seem like a pipe dream. Just look at the statistics: only 16% of our loved ones with intellectual disabilities (ID) are included in general education classrooms most of their school day.
But the research and federal law back up full inclusion with support, so how do we get there? Well, I was lucky enough to find inclusion expert, Nicole Eredics from The Inclusive Class. This amazing inclusion teacher has created a huge database of resources to support full inclusion for even students with Down syndrome. You can also buy her book (shown below) with over 40 modifications for students with the most significant needs.
Read More11-year-old Salome is a female of color with a disability. English is a second language for her immigrant parents, and her extended family lives far away. Many students like Salome and their families are disenfranchised by the special education process, and don’t feel like they can adequately advocate for inclusion and proper supports under the law.
“I’m always mindful of our privileges and challenges,” says Salome’s mother, Catalina Angel. “In many ways we are like any family with dreams of a good future and in may ways we struggle in a place where we constantly have to demonstrate that we have worth.”
Read MoreSomeone recently told me that the head soccer coach at my alma mater -- Xavier University in Cincinnati -- has a little girl with Down syndrome too! I had no idea.
The Xavier soccer coach's name is Andy Fleming. He and his wife Amy have four children, and the second -- a little girl named Devin -- has Down syndrome. Since Devin was born, Andy and Amy have hosted one soccer game per year called "Devin's Game." Devin gets to go out on the field at this annual game, kick the ball around and show people the beauty (and cuteness) of Down syndrome.
s parents of kids who are differently abled, we all strive for one common goal; inclusion and acceptance of our children. You would think it would be easy for kids to make friends with other kids or for people to accept others without questions or hesitations. However, that’s not always the case. But reaching out and educating others is something we can all do in order to help make a change. Kate Manduca, an Ambassador and contributing writer for Save Down Syndrome, did just that. She recently sent a letter to her newspaper, about inclusion and acceptance regarding individuals who have Down syndrome.
Read MoreOn January 10, 2019, Patsy and Albert Christy plead guilty to wreckless homicide for abusing and neglecting their son, Logan, for 20 years until their abuse lead to his death. Logan was kept in his room with a padlock on the door. The window to his room was shattered, the floor covered with glass and feces, since he was locked in and unable to use the restroom. Logan had been starved, and kept from water. At the time of his death, he had also contracted pneumonia, most likely from the winter air coming through his broken window. For all of this, Patsy and Albert Christy were each only sentenced to 5 years in prison with the option for parole by the following April.
Read MoreAdvocate: (n.) one who defends or maintains a cause or proposal.
When do you begin calling yourself an advocate? Must you apply for a position of power, standing before the courts on another’s behalf? Is there a job description that you must follow? Are there resume build techniques to become an advocate?
Read MoreOctober: known for ghosts and ghouls, pink ribbons and puzzle pieces. More often than not, when people think about October, Halloween, Breast Cancer Awareness and Autism Awareness (in Canada) come to mind. People don’t often realize that October is also Down syndrome awareness month. Before having my daughter, Charlie, I had no idea there was even a whole month dedicated to recognizing Down syndrome. How can I expect those who don’t live within the Down syndrome community to know this when I didn’t? Simple - by Advocating.
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